Lymphoedema Service: St John's Hospice

CamdenBrentHammersmith & FulhamHarrowKensington & ChelseaWestminster

The lymphoedema service treats primary and secondary lymphoedema and chronic oedema, aiming to prevent infection, reduce swelling, correct limb distortion, and improve limb mobility, while also educating and supporting patients in self-care.


Eligibility Criteria

Inclusions

  • aged 18 years and over
  • registered with a GP in Brent, Camden, Harrow, Hammersmith & Fulham, Kensington & Chelsea and Westminster
  • patients with primary or secondary (non-cancer related) lymphoedema – Camden only.

Exclusions

  • under 18 years
  • registered with a GP outside the commissioned catchment area
  • lipoedema patients with no pitting swelling
  • active leg ulcers, unhealed wounds or lymphorrhoea requiring wound care/bandaging. Refer once fully healed
  • arterial insufficiency/PVD or ABPI ≤0.8 – requires vascular assessment first
  • already under District/Community Nursing but does not have a recent ABPI available with the referral
  • has diabetes with symptoms of arterial disease, e.g. rest/night pain, neuropathic pain or intermittent claudication – requires Vascular assessment regardless of ABPI
  • widespread oedema due to uncontrolled cardiac or renal failure – this should be medically stabilised first
  • had a DVT within the last eight weeks and has not completed first-line anticoagulation treatment
  • obesity (Class I–III) and has declined or is unwilling to engage with weight-management measures.

How to Refer

Referrals are accepted from all healthcare professionals.

EMIS form

Referral methods: Email

Complete the required referral form and send to nhsnwl.stjohnsreferrals@nhs.net

  • Lymphoedema Service – St John's Hospice for (non-cancer related) lymphoedema – Camden only
  • All Age Pan-London Specialist Palliative Care Referral Form
  • NWL ICS Lymphoedema Service – St John's Hospice (Email) Brent & Harrow

Where to find the forms

  • Camden: Camden Global Documents > Nursing
  • NCL: NCL Global Documents > Palliative Care & EOLC
  • NWL: NWL EMIS Enterprise S&R > 2WW – Urgent Susptected Cancer (USC) > Oncology

For practices that use SystmOne, refer via Referral Wizard.



Review date: Monday, 20 September 2027